FAQ - Frequently Asked Questions

1. Why is collecting data on childhood diabetes important?

Collecting data on childhood diabetes is crucial for understanding its prevalence, identifying risk factors, and developing effective treatment strategies. It helps researchers and healthcare professionals gain insights into the causes of the condition, track trends over time, and improve the overall well-being of affected children by tailoring interventions based on reliable information.

2. How can one get involved?

Once the registry is live and out of the beta phase, individuals, including diabetologists, endocrinologists, pediatric endocrinologists, and pediatricians, can contribute by filling out the joining form.

3. Is the data provided secured and kept confidential?

Rest assured, the collected data on childhood diabetes will be kept securely and treated with utmost confidentiality. We use technical and organizational security measures to protect your personal data from manipulation, loss, destruction or access by unauthorized persons.

4. What are the diverse applications of the collected data?

The collected data will help us understand prevalence, identify risk factors, and form targeted prevention and treatment strategies, ultimately improving overall healthcare outcomes for affected children. The data can be analyzed for various outcome parameters and study the effect of any interventions or policy changes.

5. Is the registry a temporary activity or a long-term activity?

It is a long-term activity allowing continuous data collection and analysis to support ongoing research and healthcare initiatives.

6. How much time does it take to enter the data of one PwD?

Data entry time for one Person with Diabetes (PwD) varies but generally takes a few minutes. Initial entry of a new PwD may take 10-15 minutes. The follow-up data entry should not take more than 5-8 minutes.

7. Does it have any criteria for the center to participate and how to contact?

We will initiate the registry at a few larger centers with a substantial number of children with diabetes. This will work as a pilot to identify any practical issues/glitches. When it starts working smoothly, it will be extended to all centers in India willing to contribute. Contact details will be shared once the registry is rolled out to all interested centers.

8. What are the benefits of joining IPDR (for individual centers/clinics)?

Joining a diabetes registry offers benefits such as contributing to research, accessing personalized healthcare insights, and being part of efforts to improve diabetes prevention and treatment strategies. Individual centers will have full access to their own data, which can be easily analyzed for a number of parameters. It will be a digital storage of their registered data of PwDs.

9. Who has access to the collected data?

The participating centers will only be able to access their own data. ISPAE diabetes registry committee will be able to collate and analyze the whole data set for various purposes, including advocacy, policy-making, and research.

10. Whom to contact for troubleshooting?

ISPAE diabetes registry committee will always be able to help in case of difficulty accessing the registry.

11. Who will have ownership of the data asset?

ISPAE will have the right to collate and analyze the data without breach of any confidentiality.

12. Will the society provide any personnel to enter the data?

No. The personnel of the concerned center will do all the data entry.

13. Can I enter data on mobile or tab?

The IPDR website is accessible on all forms of smart devices (PCs, mobile phones and tablets)